Information about Ellies Retreat
Contact email: firstname.lastname@example.org (completely confidential)
Ellie’s Retreat is available from Sunday 12th March 2017, offering FREE respite breaks exclusively for families who have suffered the loss of a child.
Ellie’s Retreat is very special and unique to Ireland. Ellie’s Retreat is a static mobile, located at Castle Archdale caravan park, Co Fermanagh.
If you wish further information please contact the above email or message Ellie’s Page on Facebook.
Ellie was born with the very debilitating H-ABC Syndrome (Hypomylineation with atrophy of the basal ganglia and cerebellum) with secondary dystonia which is associated with the syndrome. At the time of her diagnosis she was only the 22nd person in the world identified with H-ABC. When Ellie was born she showed no symptoms of any neurological condition however as time progressed there were subtle signs that something was not right.
On the 16th of March 2012 her parent’s were informed that Ellie had a PROGRESSIVE neurological condition. However, despite all her efforts, on the 9th of March 2016 Ellie lost her long and heroic battle. Ellie was just 8 years old.
Ellie’s parent’s experienced a short break at Alice’s Escapes in Cumbria, a charity which also offers respite breaks for families and this is where the idea for “Ellie’s Retreat” was born.
Ellie’s Retreat offers free respite for families who have lost a child. It offers a place to escape and have some anonymity, space and time together with the other members of the family. It will hopefully be a step forward in the healing process. Ellie’s Retreat is a safe haven for families, offering week or weekend breaks.